Greetings, readers! Today, we want to talk about a foundation that aims to find a cure for mesothelioma, a rare and aggressive form of cancer that affects the lining of the lungs, heart, or abdomen. The Mesothelioma Applied Research Foundation is a non-profit organization that funds research, provides support to patients and families, and raises awareness about mesothelioma. In this article, we will explore the work of the foundation, its achievements, and how you can help.
What is the Mesothelioma Applied Research Foundation?
The Mesothelioma Applied Research Foundation (MARF) was founded in 2000 by a group of patients, families, and advocates who recognized the need for better research and treatment options for mesothelioma. The foundation is based in Alexandria, Virginia, and has a team of dedicated staff, board members, and volunteers who work towards a common goal: to find a cure for mesothelioma.
Over the years, MARF has become a leading organization in the fight against mesothelioma, thanks to its research funding, patient support services, and advocacy efforts. The foundation is funded by donations from individuals, corporations, and other organizations who share its vision of a world without mesothelioma.
The Mission of MARF
The mission of the Mesothelioma Applied Research Foundation is to eradicate mesothelioma as a life-ending disease by funding the most promising and impactful research projects, supporting patients and families, and advocating for increased federal funding of mesothelioma research.
The Vision of MARF
MARF envisions a world where mesothelioma is no longer a deadly disease, and patients have access to effective treatments that can cure or manage the disease.
Why is Mesothelioma Research Important?
Mesothelioma is a rare and deadly cancer that affects approximately 3,000 people in the United States each year. The disease is caused by exposure to asbestos, a naturally occurring mineral that was widely used in construction, shipbuilding, and other industries until the 1980s. Despite advances in cancer treatments, mesothelioma remains a challenging disease to treat due to its aggressive nature and resistance to chemotherapy and radiation therapy.
Research is critical to finding better treatment options for mesothelioma and ultimately, a cure. The Mesothelioma Applied Research Foundation funds research projects that aim to improve our understanding of mesothelioma, develop new therapies, and enhance the quality of life of patients and families affected by the disease.
What Does MARF Do?
The Mesothelioma Applied Research Foundation is involved in various activities aimed at achieving its mission. Here are some of the things that MARF does:
Funding Research
MARF is committed to funding research projects that have the potential to make a significant impact in the fight against mesothelioma. The foundation has funded over 150 research projects since its inception, with a focus on translational research that can lead to clinical trials and ultimately, better treatment options for mesothelioma patients. MARF also provides grants for early-career researchers who are pursuing a career in mesothelioma research.
Supporting Patients and Families
MARF provides various support services to mesothelioma patients and families, including a toll-free helpline, online support groups, and patient travel grants. The foundation also hosts an annual international symposium on mesothelioma that brings together patients, families, researchers, and healthcare professionals to share information and learn about the latest mesothelioma research and treatment options.
Advocating for Increased Federal Funding
MARF is committed to advocating for increased federal funding for mesothelioma research. The foundation works with policymakers, government agencies, and other organizations to raise awareness about mesothelioma and the need for more research funding. MARF also advocates for better access to healthcare for mesothelioma patients and the inclusion of mesothelioma in clinical trials.
Raising Awareness
MARF raises awareness about mesothelioma through various campaigns, events, and publications. The foundation works to educate the public and healthcare professionals about the risks of asbestos exposure and the signs and symptoms of mesothelioma. MARF also raises awareness about the importance of mesothelioma research and the need for a cure.
The Achievements of MARF
Over the years, the Mesothelioma Applied Research Foundation has achieved significant milestones in the fight against mesothelioma. Here are some of the foundation’s achievements:
Funding Groundbreaking Research
Since its inception, MARF has funded over 150 research projects, including some groundbreaking studies that have improved our understanding of mesothelioma and led to the development of new treatments. For example, MARF-funded research has identified new biomarkers that can help diagnose mesothelioma earlier and predict patient outcomes. MARF also funded the first clinical trial of immunotherapy for mesothelioma, which showed promising results.
Providing Support to Mesothelioma Patients and Families
MARF has provided support services to thousands of mesothelioma patients and families, including a toll-free helpline, online support groups, and patient travel grants. The foundation has also helped to connect patients with mesothelioma specialists and clinical trials, giving them access to the latest and most effective treatments.
Advocating for Mesothelioma Patients and Families
MARF has been a strong advocate for mesothelioma patients and families, working to raise awareness about the disease, improve access to healthcare, and increase research funding. The foundation has successfully advocated for mesothelioma to be included in the Department of Defense’s Peer-Reviewed Cancer Research Program, which provides millions of dollars in research funding each year.
MARF’s Website and Resources
If you want to learn more about mesothelioma, the work of the Mesothelioma Applied Research Foundation, or how you can help, you can visit the foundation’s website at www.curemeso.org. The website provides a wealth of information about mesothelioma, including symptoms, diagnosis, treatment options, and support services. You can also find the latest news and research updates on the website, as well as information about how to donate, volunteer, or participate in events.
FAQs
1. What is mesothelioma?
Mesothelioma is a rare and aggressive form of cancer that affects the lining of the lungs, heart, or abdomen. The disease is caused by exposure to asbestos, a naturally occurring mineral that was widely used in construction, shipbuilding, and other industries until the 1980s.
2. Who is at risk of mesothelioma?
People who have been exposed to asbestos, either in the workplace or through secondary exposure, are at risk of developing mesothelioma. The disease has a long latency period, which means that it can take several decades for symptoms to appear after exposure to asbestos.
3. What are the symptoms of mesothelioma?
The symptoms of mesothelioma can vary depending on the location of the cancer. Common symptoms include shortness of breath, chest pain, coughing, fatigue, and weight loss. In some cases, mesothelioma can also cause abdominal pain, swelling, and bowel obstruction.
4. How is mesothelioma diagnosed?
Mesothelioma is diagnosed through a combination of imaging tests, such as X-rays and CT scans, and biopsies, which involve taking a tissue sample for examination under a microscope. A diagnosis of mesothelioma may also require additional tests, such as blood tests and pulmonary function tests.
5. What are the treatment options for mesothelioma?
Treatment options for mesothelioma include surgery, chemotherapy, radiation therapy, and immunotherapy. The choice of treatment depends on various factors, such as the stage of the cancer, the location of the tumor, and the overall health of the patient.
6. Is there a cure for mesothelioma?
Currently, there is no cure for mesothelioma. However, researchers are making progress in developing new treatments that can improve survival rates and quality of life for mesothelioma patients.
7. How can I help the Mesothelioma Applied Research Foundation?
You can help the Mesothelioma Applied Research Foundation by donating to fund research, volunteering your time and skills, participating in events, or spreading the word about mesothelioma and the work of the foundation.
8. Can I get involved in mesothelioma research?
Yes, there are many opportunities for individuals to get involved in mesothelioma research, such as participating in clinical trials, donating tissue samples for research, or volunteering as a research assistant. You can find out more about these opportunities on the Mesothelioma Applied Research Foundation website.
9. Are there any support services for mesothelioma patients and families?
Yes, the Mesothelioma Applied Research Foundation provides various support services to mesothelioma patients and families, including a toll-free helpline, online support groups, and patient travel grants. The foundation also hosts an annual international symposium on mesothelioma that brings together patients, families, researchers, and healthcare professionals to share information and learn about the latest mesothelioma research and treatment options.
10. Can mesothelioma patients benefit from palliative care?
Yes, palliative care can improve the quality of life of mesothelioma patients by managing symptoms such as pain, shortness of breath, and fatigue. Palliative care can also provide emotional and spiritual support to patients and families.
11. Is there a mesothelioma registry?
Yes, the National Mesothelioma Virtual Bank is a registry that collects and stores biological samples and clinical data from mesothelioma patients. The registry aims to support mesothelioma research by providing researchers with access to high-quality samples and data.
12. What is the role of asbestos in mesothelioma?
Asbestos is the primary cause of mesothelioma. The tiny fibers of asbestos can become trapped in the lungs or other organs, causing inflammation and genetic damage that can lead to the development of cancer.
13. How can I reduce my risk of mesothelioma?
You can reduce your risk of mesothelioma by avoiding exposure to asbestos. If you work in an industry that uses or used asbestos-containing products, be sure to follow all safety regulations and wear protective equipment. If you suspect that your home or workplace may have asbestos-containing materials, have them tested and removed by a trained and licensed contractor.
The Importance of Supporting MARF
The Mesothelioma Applied Research Foundation is doing crucial work in the fight against mesothelioma, and your support can make a significant difference. By donating, volunteering, or spreading the word about mesothelioma and the work of the foundation, you can help fund critical research projects, provide support to mesothelioma patients and families, and advocate for better healthcare and more research funding.
Together, we can find a cure for mesothelioma and improve the lives of those affected by this devastating disease. Thank you for reading, and we hope you will consider supporting the Mesothelioma Applied Research Foundation.
Closing Disclaimer
The information provided in this article is for informational purposes only and should not be considered medical advice. If you have concerns about your health or the health of a loved one, please consult a qualified healthcare professional. The Mesothelioma Applied Research Foundation does not endorse any specific treatments or products mentioned in this article.
| Name | Mission | Location | Contact |
|---|---|---|---|
| Mesothelioma Applied Research Foundation | To eradicate mesothelioma as a life-ending disease by funding the most promising and impactful research projects, supporting patients and families, and advocating for increased federal funding of mesothelioma research. | Alexandria, Virginia | Phone: (703) 879-3797 Email: info@curemeso.org |
